Answers From Our Expert: Kidney Disease
Q: Where can I find information on Goodpastures or Goodpasture's syndrome?
A: From the following websites:
- National Institute of Diabetes & Digestive & Kidney Diseases of the National Institutes of Health
- National Kidney Foundation
- Dr. Koop's Medical Encyclopedia
For support groups, ask the local National Kidney Foundation affiliate. There is a list of NKF affiliates on the NKF website.
The American Self-Help Clearinghouse has information on the Internet about existing support groups (none listed for Goodpasture Syndrome now) and information to help form a support group.
You can find a list of support groups and information on how to subscribe and start your own group in the kidney category on Yahoo! Groups. One very active support group on Yahoo! Groups for people with all different kinds of kidney disease is Dialysis_Support.
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