On-line Support Groups & Discussions

• Alport Forum - forum for patients, family, nephrology professionals, indeed everyone interested in Alport syndrome, an hereditary disease of kidneys, hearing, etc.
• alt.support.kidney-failure Newsgroup - a newsgroup subscription service for people interested in kidney failure
• AMYLOID - join this listserv run by the Association of Cancer Online Resources
• CAPD-CCPD - Yahoo! support group for people on peritoneal dialysis
• cyberNephrology - National Kidney Foundation's Internet site that links people to discussion groups, key conference sessions, journal clubs
• Dialysis4Fun4Life - join this forum for humor and storytelling by those with kidney disease
• Dialysis-Nurses - join if you're a nurse interested in learning and possibly working in dialysis
• DIALYSIS-support - support group for people with kidney disease; 750 members, active since 1995
• Dialysis Online! - bulletin board for patients, family, and renal professionals
• EndStageRenalDisease - support group for people on dialysis or with transplants
• Home Dialysis Central Message Boards - read and post messages for patients and professionals about peritoneal dialysis or home hemodialysis
• IgA Nephropathy Support Group - support group for people with IgA nephropathy or those interested in learning more about IgA nephropathy and/or kidney disease
• IGAN - send e-mail to majordomo@ualberta.ca with a one-line message: subscribe igan
• KidneyDisease - send e-mail to majordomo@ualberta.ca with a one-line message: subscribe kidneydisease
• NephKids - a listserv for children with kidney disease and their parents that you can subscribe to by sending an e-mail to majordomo@ualberta.ca with a one-line message: subscribe nephkids
• Physician's Pre-ESRD Listserv
• PKDCARE - support group for people with polycystic kidney disease or interested in learning more about PKD
• RenalRD Discussion Group - unmoderated listserv sponsored by the University of Alberta for those in renal nutrition in the U.S., Canada, and other locations
• Renalpro - unmoderated listserv sponsored by the University of Alberta for renal nurses, technicians, dietitians, social workers, administrators, physicians, engineers, etc.
• RenalWeb Discussion Boards - topics of interest to patients, administrators, technicians, nurses, dietitians social workers, plus boards on legal issues, industry
• Teen-Support-Group - support for tweens over 10 and teens
• TRNSPLNT - a listserv for people with transplants or those interested in learning more about transplants that you can subscribe to by sending an e-mail to listserv@wuvmd.wustl.edu with a one-line message: subscribe TRNSPLNT
• txlongterm - support group for long-term transplant recipients (kidney and other organs)
• Young Dialysis Patient (under 30) Support - technical and non-technical information and support for people under 30